Anti-Oxalate Diet

[CarterDK]

You’re probably thinking of @Cindy2, who discusses a low oxalate diet in the following comments (in descending chronological order):

Has anyone read the book of Carine Prevot about 'fixing her EM'?

I don’t know what worked for her, but a low oxalate diet is working miracles for me. And I might be naive, but I would never hold back helpful info abpit EM and try to profit from it. It’s like refusing to let someone in your lifeboat when there’s plenty of room and supplies… If you want info about what worked for me, there is a yahoo support group called TLO (Try Low Oxalate) that has tons of helpful information. If you decide to try it, start gradually. I don’t know how many people it cou…

Who diagnosed you and what meds are actually working for you?

To answer your question, I was officially diagnosed by an excellent podiatrist named Dr. Kelly Stagg in northern Utah. This is after asking every doctor and specialist I came across for 7 or 8 years if they had heard of EM. It was the only thing that fit my awful symptoms. No one had heard of it and one of them was frankly a big jerk about it and acted like I was a total moron to think I could possibly have a rare disease. I never thought to go to a podiatrist because I was so sick overall. …

Diet changes and how it affects flares

Now I am trying a low oxalate diet, my urologist put me on it. I wish I had done it gradually, but the doctor didn’t tell me that. Apparently, if you do this suddenly, then the body decides it is a great time to get rid of the oxalate it has been putting into your cells as a way of dealing with high oxalate levels. And so then you get a whole lot of oxalate (the stuff that left your cells) now running around in your bloodstream. And you get sick. This process starts a few days or a week a…

Amyloidosis and EM

Update - the nephrologist does not think I have amyloidosis, at least of the kidneys. It is a big relief. He will keep monitoring me for the next several years, however. They put me on a low oxalate and a low protein diet. I wish they had warned me to do the low oxalate thing gradually, but that’s a whole different support group. And the low oxalate is really affecting my EM. Once I am through the uncomfortable process of adjusting to it, I will write more. I have hope that it might get…