Attention all Em'ers. XENON research study - free genetic testing

Hi Guys,

just to remind everyone ,and to especially inform our new members, of this year long research study which ends December 2014.

Many LWE members with EM - primary and secondary - have applied to take part. A fair share are being accepted. Thats wonderful news! Just log on to link and fill in questionnaire.

ANNOUNCEMENT: Xenon Pharmaceuticals Inc. is inviting people with Primary Erythromelalgia to take part in a genetic research study. Individuals who meet the study criteria will provide a saliva sample for genetic testing and are given the option to receive their genetic results through their physician. There are no costs associated with taking part in this research study.
To read more, please visit

Xenon Pharmaceuticals Inc.

■■■■■■■■ Gilmore Way
Burnaby, British Columbia
Canada V5G 4W8
Telephone: 1-604-■■■■■■■■
Fax: 1-604-■■■■■■■■
Email: ■■■■■■■■■■■■■■■■■■■■■■■■■

PLEASE NOTE: Bens Friends and TEA are not involved in this study and cannot provide any opinion or advice regarding this study. We are just sharing this information as posted on TEA website/ facebook. Further inquiries about the study should be directed to Xenon Pharmaceuticals Inc.

Good luck

God bless


Thank you for the reminder Mads!

I am involved now and hope others will look into it.

It doesn't hurt or cost anything to fill out the questionnaire even if you don't have a primary EM diagnosis. Unless you actually know for sure what is causing it you may qualify and through research hopefully help us all someday.

Take care,