Children with EM

Just to remind members that we have a sub group for parents of children with EM.

http://forum.livingwitherythromelalgia.org/group/parents-of-children-livingwitherythromelalgia

Pediatric research files attached

God bless

Moderator team

thank you very much

I try to access this page for parents of children with EM and it says access denied. My daughter has been diagnosed for over a year now and I greatly need support any suggestions?

Hi Brianne1
Sorry the person that runs this website has replied to my question about the group parents of children with EM and I have been told it no longer exists because people weren’t using it.
Sheltielife