I did not see Dr. Davis. I did see 2 other derms and a neurologist.
The derms did see my pic of red toes, but said they would not “render me a diagnosis”.
I have no idea why. I do not turn red near heat in fact I have been wearing socks and UGG boots lately to keep my feet warm.
Who knows why .
My local derm said its EM. Of course I taught him about EM and when he first saw my pics he said “no way”.
John’s Hopkins does see EM.
I am going to see Dr. Alhariri at JH who is a derm and has treated a few EM patients.
I am stable right now - aspirin and cytotec .
I’m going to see the doc anyway to see what he suggests
Mayo did not give me any advice other than to see my local doctor about meds.
I had the sweat test, EMG, Qsart, Qst - all considered normal.
Essentially, Mayo thinks the majority of EM (85-90% is caused by small fiber neuropathy.
They said I don’t have any neuropathy and they think its a possibility that my pain could be coming from my CNS.
Make so sense to me though. Can my CNS trigger my toes to turn red at times?
I am sick of all of the tests and docs - I’m just ready to go on with my life.
Have you tried aspirin or cytotec?
I take 325mg aspirin at 4 and 8 pm.
When do you head to Mayo?
Get off all of the meds that prevent you from sweating for 5-7 days before the tests.