EM cure, have u tried this?

[CarterDK]

Seriously?!

A topic discussing it was the most read and replied to post of 2018! It was at or near the top of the “Latest” posts section almost all year.

You can find that discussion here: EM treatment "Bob's protocol"

It’s also discussed in the following topics:

Bob Bartholomew's Protocol

From Paula: Bob Bartholomew’s Protocol I was able to put my Erythromelalgia in remission! You’ll find below a description of how I did it, but in the interest of being thorough, allow me to disclose that I’m 39 and in perfect health otherwise. For most of my adult life I have eaten a natural, whole foods diet and have exercised multiple days per week. My body fat is under 10% and my resting heart rate is in the 40s. My blood work is so good that it makes my doctor’s toes curl. I don’t say this…

Has anyone actually found relief/improvement?

Hi Dalkola, I have EM in my feet very severe. I found relief in Bob’s protocol (hot water soaking). I’m on it for 4 weeks now. My constant flaring is gone now, but I’m still not able to be active for more than 15 minutes. So I do not have my life back, and I really do know and feel what you are going trough. I’m 35 years old, and I have EM in this severe form for 1,5 years now. I have a childwish, but this disease makes it impossible to make that wish come true. I would really recommand you to…

Toe nails

I have come to realize that I believe that the cooling part and fans has kept the fungus active for whatever reason and since I started doing Bob’s Protocol in December, the last two months, no fungus at all !!! Nails are softer and not as hard. They look good. However, I do think that Bob’s Protocol has helped with the fungus and no I have no explanation of it. Except I had the fungus for almost two years and used prescription cream, etc. and nothing helped it. They wouldn’t give me the pill …

Medications for the HEAT!

Have you read about Bob Bartholomew’s Protocol here? I highly recommend joining this group: https://erythromelalgia.org/ Look under Resources, also Support.

Looking for Ways to cope

Hi Jordy, Your EM onset sounds very similar to mine. I don’t usually reply to people’s posts but am to yours. I have tried countless drugs and creams with very little help except to make me groggy. 6 months ago I started an accupuncture series with an exceptional acupuncturist. She addresses the neurve damage. I also began doing Bob’s protocol. Soaking my feet in hot water and putting away the fans and cooling devices. It was very hard at first but now I am virtually flare free.For the first t…

People living in NewZealand

Hi Dene Firstly do you know if you have primary or secondary EM? It’s important to exclude any potentially treatable secondary cause. Prof Andre Van Rij, surgeon in Dunedin has experience with EM, as I recently read a research publication of his providing evidence that the frequency of EM is in fact a lot higher than is usually quoted. The paper established that quality of life is significantly adversely affected by EM. I suggest phoning his secretary and seeing if he can recommend anyone in …

Hello from downunder

Relatively new to this excellent forum, been posting occasionally but finally getting around to an introduction… Screen name: Stan Country: kiwi, now in Australia Region: Melbourne, Vic Are you a patient: patient Diagnosed? : Yes (self), not gene tested yet Treatments: Pregabalin (Lyrica) helps at 225mg nocte. Looking forward to new sodium channel blockers becoming available. Also trialling various antioxidants including ALA, thiamine, magnesium orotate and CoQ10. The latter 3 were sugge…