Hi Dalkola,
I have EM in my feet very severe. I found relief in Bob’s protocol (hot water soaking). I’m on it for 4 weeks now. My constant flaring is gone now, but I’m still not able to be active for more than 15 minutes. So I do not have my life back, and I really do know and feel what you are going trough. I’m 35 years old, and I have EM in this severe form for 1,5 years now. I have a childwish, but this disease makes it impossible to make that wish come true.
I would really recommand you to try Bob’s protocol. You can find it if you scroll a bit down in the topics on this forum, it’s in the title.
P**** C**** (nickname Rayofhope) has posted about it in january this year.
For me it takes a lot of the pain away as long as I sit down. And at night I have less flaring; my feet must stay out of the covers, but they no longer flare if they touch the pillow/covers. I sleep a lot better now.
I hope you will benefit from it too. The treatment is rough for the first few days; but it will soon get better!
I wish you luck! 