Ah, i see.
But since u got the symptoms from the first time( 2 years ago ur saying), have ur pain increased? Is it worse?
No itâs the same no worse just on more parts of the body. I was pretty pissed off today and becasue of that my hands face and knees swell up and felt like they were a millions degrees, my palms itch and feels like bee stings or pricking pain.
E
Have you gone to the doctor? Tried any medications?
What part of Arizona are you in? I also live in AZ and my doctor is also Dr. Nguyen.
curlyhann,
im so sorry I just saw this I live in san tan valley and drive to her gilbert office at dermatology solutions. Where do you live? Im sure we see the same one cause she is literally like the only person I have found out here that knows anything about EM. She took me to Mayo clinic when she first diagnosed me like a show in tell almost so that 30 other derms could meet me and see my pics and ask me questions
Hi Mommaof4nuts, what a small world! I live in Mesa. I havenât seen Dr. Nguyen since November as I have mostly excruciating pain on the bottom of both of my feet. Dr. Nguyen said she wouldnât be able to treat me since she is not a pain management doctorâŚthis is so frustrating. Now I am under the care of Arizona Pain Specialists and have a consult with the spinal cord stimulator rep on March 1417th. Currently Iâm taking 250 mg of tramadol daily and that barely touches the pain. Hopefully the stimulator will bring me some relief soon. Would love to meet you some time if you are in the area or talk by phone maybe. Thanks for replying.
Im so sorry your struggling it is very frustrating bouncing from one dr to another to another. Since my fusion 4 years ago I still have chronic pain and nerve problems in my right arm and hand. I have since found out that my c3-4 is pressing on the cord and my pain dr that I been seeing for the past 2 years is sending me back to the neuro surg who did my first fusion to see what his thoughts are on the pain and nerve pain that I have. I also have Raynaudâs so my body in general doesnât regulate temperature well. Living in az is defiantly bad for a person with EM soon as I walk out the door I start feelin the burn. I hope the cord stimulator will help. I have been on gabapentin 1200 mg 3 times a day I also take nortriptyline, baby aspirin, Effexor now instead of Cymbalta dr nguyen wanted me to switch and see if it worked better, I also take oxycodone for my neck pain currently I have had a headache since tues due to my neck im certain ugh itâs like oh no not just one problem lets give ya multiple problems all at once lol. I try to not get depressed im only 40 and I have 4 kids but sometimes between the neck pain and the EM and been in this foot for a problem I have had with my foot then the hip is killin from the boot so I total get it like when it rains it pours man. we should absolutely chat ot very often you meet someone who can relate to your em and or in our case even our back issues.
stay cool
E