I think I have EM

[Lynee]

I know you say there’s not much help in Slovenia, but could you get a pretty simple drug, Amitryptyline? Not the cream, just the pills? It’s a pretty old medicine so maybe they have it. I take just 10 mg/day and it makes a BIG difference. Be careful with capsaicin. It made my flairs terrible! I don’t know how old your post is but I hope you’ve found some relief.

[leosinho]

@graceee06

I believe that is Frankie that is from slovenia. I am from Massachusetts. Haven’t tried any meds yet for this. I just started to see a different doctor who did a ton of blood work to see if I have any autoimmune problems or anything else that could be causing this. I am SO nervous for my blood test results thinking that I could have some terminal illness or something. Hopefully I just have primary EM. I started low dose naltrexone two days ago which can help with a host of different things (my doc isn’t sure about the EM) but thought we should give it a shot. I really just want to be normal again! I see people walking around in shorts and catch myself looking at their legs wishing mine looked like that! (My lower legs get flares often). I really think stress/anxiety plays a big role in this disease.

You should try Bob Protocol method. Heard of it?

[frankie]

@herdfan

I’m so sorry you can’t seem to get help. The medicine that has helped most is cyproheptadine. I pray that’s available and will help you.

Thank you @herdfan , I’ll ask my doctor. Is this an antihistamine drug? I tried Claritine (Loratadine) it didn’t help. I hope you are doing well, your prayers mean a lot to me. God bless Frankie

[herdfan]

Cyproheptadine is an antihistamine but in a class different from the usual ones such adventure the ones you mentioned. I hope it helps you.

[anon16865673]

Cyproheptadine is an antihistamine and an antiserotonin drug. For most that this helps, including myself, this is due to the antiserotonin properties. This is why normal OTC antihistamines don’t touch EM that is caused by serotonin imbalances.