Welcome aboard Susie! My name is Arjuna, and I want to officially welcome you onto our excellent support community. Thank you for sharing your story with us. I understand that you have now been diagnosed with Erythromelalgia, on top of having a variant of Guillain Barre syndrome. It must have been frustrating to have no one notice your symptoms in the beginning, but it is a relief knowing that you were able to get the proper attention, thanks to your diligence. I love your attitude, and am rooting for you to ditch the wheelchair as soon as possible as well Susie! How has your treatment been for Erythromelalgia? Have you been feeling any pain lately? Is there anything that is bothering you?
If so, I strongly encourage that you begin your own discussion post Susie. You can do this by clicking on the “+ New Topic” button, which will allow you to engage the community with your own question. Please let me know if you require any assistance in creating your discussion post! You can also use the search icon on the top right corner (magnifying glass icon) to search for existing discussion topics that may be of interest to you by entering key words that may be of relevance!
We are all rooting for you to ditch the wheelchair soon Susie. Please keep us posted- I look forward to hearing from you!
Best,
Arjuna