I just started getting one cold hand and one warm hand, strange sensation… I have been dealing with bilateral cold hands and feet and burning hot hands and feet for years, I wonder why this is changing?
Hi Jon -
I still do get one HOT foot and one COLD foot occasionally this may happen one day (or night) and the next day it will switch around - totally weird and random - NO explanation for it ...
Winter is on the way here which should be better for my feet (moreso than summer) ...
Cheers - take care -
frostbite
Cooma NSW
Australia.
Hi Jon.
I get this too in my hands and feet. Mine are usually bilateral as well. Crazy strange I know! I am not sure of the cause but I have noticed a lot of the time although not EVERY time I am leaning more to one side in my chair when this occurs. Even just a slight almost undetectable lean is enough to cause this. Same for my feet....If I lean a bit on my hip ever so slightly this happens. I even get cold patches on burning hands and feet. I am not sure if I added the pic on my page but I took a good one of this white patch of numb cold skin completely surrounded by burning skin like an island!! For me the common denominator seems to be pressure driven but I don't know why. I do get this occasionally without any trigger I have noticed anyway. The only good thing is you can use your cold hand/foot to cool your hot one and vice versa.
I am sorry I wasn't much help other than letting you know you are not alone.
Take care
Wouldn’t this be diagnosed as Raynaud’s syndrome? I have already been dx’ed with SLE Lupus, so it could be associated with that…
The leaning to one side and having it trigger the cold sounds like some spine involvement?
Hi, I started with always bilateral flares on my feet and, 4 months after, unilateral ones started as well. Coincided with aspirin intake (1000 mg) after a few days but might be unrelated. Sometimes I used the cold foot to soothe the hot one but that resulted in the hot foot getting cold and the cold one getting hot :P
Take care
Funny you mention Raynaud's Jon because I do get raynaud's , pernio and levidoreticularis but this is different. The hand or foot is just really cold but not like Raynaud's where they go white , blue and feel numb or a freezer burn sensation. It's just cold. Before my EM , Ryanaud's and the rest started I just had really cold hands and feet. I would have to wear gloves all of the time even to sleep. I was joking with my doctor about having to go around in my swimsuit and gloves because spring was already here and summer around the corner! I had to wrap napkins around my beverages or make sure I used a mug with a handle. After a few months of this it abruptly went away and my EM begain followed by Raynauds and the rest a few months after my EM began.
I have terrible back pain so I can see how it seems the spine is involved but I have had imaging of my back and they say it looks fine. I think I get inflammation that puts pressure on some nerves causing some of these issues but when I had the imaging done it wasn't happening so there was nothing to see. Just a theory.
I have been diagnosed with a non specific connective tissue disorder which I think although my doctors won't say is the cause of all of my medical problems. My doctors say it could be the cause of my EM but it is still possible to have more than one condition and it happens in some people where multiple conditions over lap making diagnosis more difficult .
Thank you for your input Jon.
Take care
Jon_sparky said:
Wouldn't this be diagnosed as Raynaud's syndrome? I have already been dx'ed with SLE Lupus, so it could be associated with that...
The leaning to one side and having it trigger the cold sounds like some spine involvement?
The reason I brought Rayneuds up, my right index finger is starting to turn white, when it feels really cold. I used to only get the cold hands and feet a couple of months a year, but now it switches back and forth… We should have special space suits!
It is possible to have SLE Lupus that would cause the inflammation, i don’t know if a MRI would detect that.
I recently had a Lumbar MRI done, the Radiologist miss a lot of abnormalities, like erosion in my SI joint. My pain management doctor looked at the images I showed him, and agrees that I should be tested for Ankylosing Spondylosis, so I will probably get the Blood test for that.
I could only imagine how bored the Radiologist must be, seeing spine after spine!