The terrible pain. The loss of social life and everything you love(i lost everything, i couldnt act anymore, i couldnt go to castings, to TV shows, to concerts, to parties… etc and had to be isolated and it makes me being dead in life and really depressed). You are totally dependant, you cant do anything by your own. I lost my young years screaming and crying in pain. I had my life destroyed. EM can take away everything. When you have a flare it stops everything, the pain is unimaginable.