Hi everyone. I’m trying to determine if my condition is EM or something else. I have an appointment with a Neurologist in a few weeks and would like to come prepared.
Condition: Paresthesia. Warmth, tingling, increased sensitivity & sometimes pain sensations, in both hands and feet. It is now mostly in the left hand–pain sensations along the rim of the palm & thumb pad, and increased sensitivity – and occasionally warm feet. The right hand usually feels “normal” but can get slight paresthesia. When the condition started around 1.5 years ago, both hands started pulsing / throbbing with heat; this occurred at the beginning of a viral infection (maybe Hep A) that lasted for several weeks. I eventually recovered, but the paresthesia remained.
Hands: they are classified as “bier’s spots.” - red on the fingers and palms (not the tops) with tiny white spots freckled all about both the bottom and the top. I’ve attached a photo from wikipedia, which is very similar to mine. My feet are generally pale and sometimes get the bier’s spots, depending on how my legs are positioned. The heat sensations in the foot sometimes go away if I adjust my back. My hands do not flare, they always look this way, even when pain/warmth is not present. They turn paler if I lift the hand up, which is a normal phenomenon of bier’s spots. None of the examples on the internet of EM look like this, though EM seems kinda broad. Looking at photos, I’ve had these spots & redness for at least 5-6, maybe 10 years, though it has gotten more intense. I first really noticed it when I began experiencing tendinitis pain in my hands and forearms around 7 months before the paresthesia (the tendinitis might be the primary cause of this pain, I’m not sure, as I have a lot of pain in several points of my forearm, upper arm and shoulder.)
Room temperature does not seem to trigger or affect these sensations. They do not generally get worse from exercise, from my experience. Most sources of heat do not aggregate or bother the condition–I can run by hands under hot water without feeling uncomfortable-- except computer heat initially (but that has faded). It is soothing to feel cold water or something cold, but the sensations are immediately present again when the stimulus is removed. If I smoke tobacco, the sensations vanish for 30min-1 hour.
Generally, I feel heat in my feet when I go to bed, but do not feel it at all when I wake up at night, and do not feel it for the first hour or so out of bed. The sensations then begin to manifest, and used to ‘flare’ 2-4 times a day (more intense pain/sensations), with low sensations in between. I have started taking some supplements - Vitamin B complex, ALA, and Acetyl-L Carnite - which seems to have made the sensations less intense.
According to blood tests, I am perfectly healthy.
Does this sound like EM or EM related? My skin temp sometimes feels physically warmer but not always.
Thanks, IV