Visit with researcher Dr. Stephen Waxman regarding research on Erythromelalgia (EM)

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Imagine this vision: Every state getting funding for research of EM. Every person suffering with EM joins in and multiple private fundraisers are held multiple places in every state. All the monies going to research. How much further would we be? Much, much further then we are now and ever before. This could change EVERYTHING for us.

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Just watched your video it’s great well done and thanks.

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Thank you so much.

I will write more to you tomorrow.

I feel like there has not been much change in the last 5 years. I have called Yale University and I have not noticed any update. I did read about a woman who pursued acupuncture and came away feeling really good.
I really would like to connect with her. I also would like to speak to the person wanted assisted suicide. I want to help her. I am 21 years with this disease. I have some personal answered for her. HELP ME PLEASE

I am not sure what exactly you are asking to help with?
I am not sure who you are speaking about so I cannot help in that way.
I am sorry that you are suffering.

If I can help in another way, let me know.