I am really relieved to have my genetic testing results back. I have secondary EM which (as far as I know) means that my gorgeous daughter isn't going to be at risk of getting it..! Phew.. Hopefully I will be lucky enough to find out what it's secondary to so this could be treated as I have heard that sometimes treating the primary can get rid of the secondary. I have also read that often people never find out the primary condition so maybe it's just wishful thinking.
Hi Laura
Good for you and God bless on the great results. I too am waiting for results from genetic testing and live in constant fear that I may have passed this on to my wonderful 15 year old very athletic son...I pray I will get favorable results as you did...thank God for small miracles!