I just read a new book by Dr. Susan Blum called Immune Recovery. She is a Functional Medicine doctor. The first part is about how anyone with an autoimmune disorder, whether they have celiac disease or not, should go off gluten. She explains how todays wheat has been genetically modified and the body cannot digest it properly. So pieces of it get into our body and it is viewed as an intruder by our immune system, which in turn, causes an attack on your own body.
I found this made sense, so I have been off gluten for 1 month. It has definitely helped my digestion but not my EM. But its early, so we'll see. My Neurologist isn't hopeful either, but he wouldn't discount it.