I just wanted to share some positivity with you after a year long battle with my health. I suffer from Fibromyalgia as well as EM and about a year ago things took a turn for the worse. I was in such chronic pain that I was struggling with life. I thought that I might have to give up work at one point and slept at least 14 hours a day but with determination and a lot of stubborness I came through it the other side. I have learnt to pace things to try to keep the severe fatigue at bay and also with the help of a pain psychologist, ACT and mindfullness I have become a more positive person. Yes I am still in pain but the way I think of the pain has changed, it was a long hard process and understand how easy it would be to slip back again so have to work hard to keep my thoughts in check.
I have come off ALL meds, trying it second time round with other 'tools' in the toolbox (ACT, mindfullness, pacing)
After not being able to do anything remotely like exercise for a while I have started to cycle again and have signed up to do a 25 mile charity bike ride next weekend.! I have done 2 training rides and hoping to squeeze another one in before the event. I wouldn't even arrange to go to local shops a few months ago because pain and fatigue was so bad, what a long way I've come.! :)