Hi all. If I have had a severe flare I get these on my back, near my groin area, and down along my inside leg. My lovely dr took a biopsy, just my luck that I had pointed to a sandfly bite 
. Does anyone else get these.
My husband has Familial Amyloidotic Polyneuropathy so we sold up and live in a van. Sometimes we are not close to drs, living at times in Aussie bush.
Looks like they are blisters. The problem is there are so many causes of them.
@sheltielife âBuggerâ 
The main thing is not to allow them to get infected if they burst. I had a much larger one that did burst I didnât think anything of it but then it developed into an ulcer.
Thx @sheltielife I have Novasone cream to put on when bad, and a natural Eczema cream each day. Just wish I knew. I am going to get a referral to a Dermatologist.
Iâm not a doctor, but those donât look like blisters to me. Iâm not sure what they are. The fact no one has responded in the affirmative to your âDoes anyone else get theseâ question is perhaps an indication they are not caused by EM.
Hi @CarterDK - I wondered if that, during flares, that my body heats up and this, then, causes the âblistersâ I am going to get a referral to a Dermatologist. Do you know if I should now close the conversation? Thx for replying.
That can happen with EM. I just didnât think those marks looked like blisters. One raised area looks like it might possibly have lymph, but is hard to tell. Blisters are usually pretty easy to spot assuming youâve had one before. Do they feel like blisters?
You donât have to close the conversation. They are typically left open ended.
@CarterDK hey, whatâs that sore on your left knee near kneecap? Looks like some I get on my legâŚAnd others are sandfly bites (we call them midfield [phonetic spelling])
The two dots just below my left kneecap that look like fang marks? Lol. Thatâs a good question. Iâm not entirely sure. I thought they were from acne or an ingrown hair. But to be perfectly honest, I donât specifically remember ever having something in that location that would have produced scaring like that. They showed up right around the time my EM started. I can say for certain they werenât there just a few months prior because I took a picture of that knee after I injured it that summer. As you can see, they werenât there then.
Hey you will be getting the ladies excited showing a leg 
Must be my eyes I canât see those two marks. Must need new specs!
@CarterDK @sheltielife I could send a pic of my (unshaved) leg to settle our fluttering hearts lol. Re you fang marks ha, I 
ď¸ snakes, lucky, as we have seriously deadly ones here. There was a really cute one, next to our van, which our son relocated to the bush across the road; a three metre Python (approx 10 feet; although legless - haha).
I got these sores when EM started. They are much worse the hotter the weather, and severity of flare. Mmmm - wonder if itâs infected hair shafts or sweat glands?!
PS I typed Midgies for Sandflies in a previous post, which autocorrect changedđ
You mentioned you get these with severe flares, do they subside after or remain and do they itch or hurt, they look like they have been scratched
Hi @marti - yes they do subside, but I still get a few. I donât scratch⌠Thatâs just how they go. From the blister like to a crater in a day or two, from where they start.
Usually there are only three or so and they are much smaller. I put Eczema cream on them, or medicated cream. My GP, who is very good, gave me a course of antibiotics, Cephalex, but that made absolutely no difference, except, to me, they felt itchier?!
Haha. I am pretty sure tnv1955 was referring to some pictures I posted in one of my original posts here, no? The one I just posted is the âbeforeâ picture. That was before I had those marks. Thatâs why you canât see them sheltie! 
Not sure what these are, I have read on here of some members having blisters along with their EM symptoms, I donât get blisters only an itchy rash during the summer months on my chest, arms and sometimes legs, Sorry I cant help further
Just read this again and you do say the photo is the before one. Still, means perhaps I donât need new specs It was late early morning in the UK and it hadnât been a good day either.
Well I found out today I have Grovers syndrome. My dermatologist identified 3 different sores/rash, and he thinks itâs due to EM flares. I canât use any soap OR shampoo. Luckily, I wash my hair with Bi-Carb, and rinse with Apple Cidar vinegar! Have done for 12 months.
Did you ask your doctor if itâs possible you only have Grovers Syndrome? What are the odds you have TWO very rare disorders? Itâs like getting struck by lightning twice.
Hi @CarterDK - no, my Vascular specialist diagnosed Primary Erythromelalgia (lucky for me he has other patients with EM). He thought my sores/rashes were infected hair follicles, and my GP thought they were vasculitis! My specialist Dermatologist said it looks like both, due to my presentation of different kinds of sores. I get these 3 different types of sores after a severe EM flare. Dr Teng said I have Grovers due to EM. I also have Peripheral Neuropathy. My Neurologist thinks I also have Trigeminal Neuralgia along my left jaw, with referred pain in my upper and lower left set of teeth. I think itâs EM, seeing Neurologist tomorrow to find out, along with MRI results. It might be my TMJ, as both jaws are bone on bone, but my dentist us fitting me put for day and night mouth guards. Thank the heavens for my private health cover, and government health care card.
