Thank you Art…The socks have twofold purpose in that the toe rubbing on the tennis shoe was a problem and then in the cold winter months need the socks for warmth as I also have Raynaud’s and besides those is that I am on a chemo drug that is known to cause serious problems with the toes (breaks in skin can turn into dangerous infections). Good grief, I think I just described being between a rock and a hard place 
. In response to your question I do not soak my feet. Is this something known to help the EM? I am a newbie so open to all suggestions. Thank you for responding.
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Hi entropy
I am a newbie too
But have been forced to learn fast …
And surfing the internet is tiresome looking for information to help you, well youre in pain
.
I develop a ton of blisters , also I discovered a lot more pain from soaking my feet
And was told by several dermatologist doctors and staff at Stanford university
I have to cold turkey any kind of soaking my feet at all
Because it was causing me a ton more problems
(Trench foot, peroneal nerve damage etc)
.
.
I had blisters that looked not normal at all, filled with blood
That looked pitch black …dark dark black .didnt even look like blood…which all the doctors had no clue why my blood was black
Also for me it slows down the healing process of the open wounds, I’ve had for months now that won’t close up
I was soaking my feet up to 30 times a day and night (I’m not lying) … it’s like drug …
And would even wake up from deep sleep with pain and soak them and then go back to sleep, waking up almost every two hours during the night.
Some days I just wanna jump back in that tub
But know I better not
Sorry for posting so much just trying to get this information out there
Thanks everyone 
️
Sounds like the soaking sort of became a ritual which then became a way of trying to relieve stress and/or feel like you were doing something to try to be in control of the problem. There are just some things we have no control over by repetitive rituals. How are you doing now? Have you stopped as instructed by the Stanford CA doctors? Is your blister still looking black? That would be of concern and warrant a recheck by the doctors due to all the reasons that contribute to EM.
Sounds weird, but I found out I have …Lyme
Not only that …it’s … late stage Lyme disease
Means I’ve had for atlest 4 years? Or way longer and never knew
I had never seen any rash or symptoms ever, or ticks evvver!
On top of it
I found out I have 4-5 other nasty bacteria
One of which was "Rocky Mountain spotted fever"
And Bartonella which attacks your feet mainly
I’ve been on antibiotics and seen huge progress in short time
Shocking! …All swelling, redness has gone down
and I can walk again slowly
A lot less pain
One of these bacteria causes
…skin atrophy and actually attacks your nervous system aswell
Ive had it for a long time , so it’s not going to be healed in a couple months
Now I believe to check for LYME and it’s co-infections
Find a LLMD near you Lyme specialist
Such a complex disease
And doctors see, to not know a lot about how to treat or diagnosis Lyme
And so many people get Misdiagnosed… which was me
I had taken the regular test 5 times with different doctors
Even bought one online to check myself
All those came back negative for Lyme
But I found out if you have… "Late stage Lyme disease"
You will never get a positive on those test (Elisa or western blot)
You need to get a more accurate test that test for Lyme and it’s other co-infections
It’s not cheap
Hi there
Yes I have had blisters they were very small on my toes I left them alone and they went away doc gave me cortisone cream to help . I do also get cramps in my toes when I have cooled my feet down with cooled packs wrapped in tea towels some I have ice packs as well Thai cools then down quickly , I take my cold packs every where I go if I didn’t I would have continues flares , hard to deal with but I try different ways to keep them and my hand cool .
Take care
Hi Entropy -
Maybe try the diabetic socks - they are cotton(ish) but are knit in such a way that they have extra stretch. Mostly at the top, but some brands do have more stretch I. The foot area, too.
Thank you Gardengirl414, I did switch to the diabetic socks somme time ago and they are the only ones I now wear if wearing socks. Since posting and because of the triple digit heat I have taken to going barefoot inside the house thinking it would help my feet in a number of ways. Fun fact: I still get blisters on my big toes. Ugh. Must be the way I walk or the EM and/or blood issues due to my cancer. Guess it is just part of learning about this body I now have and adapting where I can. Thanks again, very kind of you to take the time to share.
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Hey EM Crew!
Late post but wanted to send out this tidbit: (bullous) Pemphigoid.
It’s an autoimmune skin disorder associated with neuropathies. It can look like shingles, poison ivy or pressure blisters. My bullae have been the multiple small groupings on extremities but I’ve also had 1-3 blisters on hands and feet, mostly upper (dorsal) aspect.
My bullous pemphigoid appears after periods of excess exertion, stress & decreased nutrition. The treatment was oral & topical steroids but it took weeks for it to resolve.
Just another medical thing that I’d like to forget about. As with most of this neuro-immune-connective tissue…whirlwind just gotta keep on keepin’ on with taking good care of ourselves.
Courage, strength & hope to all,
Elis of the Berkshires.
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Hi everyone. I am relatively new to this. I have had blisters twice now on my second toe on my right foot and once on the instep of my left foot. This one was by far the largest and the worse. I have been using homemade reusable ice packs made up of rubbing alcohol and water for relief as well as my husband rubs my feet to help try and distribute the fluid in my feet. I am seeing a dermatologist for my EM. He has prescribed Gabapentin and my primary provider has prescribed lyrica. Both of which seem to not have much of an effect.
I don’t think you are suppose to be taking both gabapentin and lyrica at the same time as they are the same type of drug. I would make sure that both doctors know what the other is prescribing. Also, the drug alone may not work. Gabapentin did nothing for me and I was taking 2400 mg a day at one point. I was walking into walls, couldn’t remember the anything and just lived in a fog. What works for me is a Serotonin-inhibitor (Cymbalta), Lyrica & CBD Oil. My life has drastically improved. Not cured and not gone but 1000x better. Be your own advocate. The CBD oil made the difference for me and I’m working on taking less Lyrica because I hate the side effects. I’m still amazed at the ignorance of some. My Rheumatologist (who I really like) thought the CBD oil made me high. I can’t believe he is that ignorant about CBD oil. My PCP is very knowledgeable. The oil is not covered by insurance and it’s not cheap. CBD oil market is also like the wild, wild west (no regulation) so you need to do your research. Good luck, I hope you find some relief soon.
I know this is an older thread but I was searching for cramping and this came up. If anyone is still active in this thread, I do have a few questions. I experience cramping and tightness in my hands and up my forearms sometimes, has anyone else experienced this in their upper extremities? And regarding the blisters or bumps - I too get these blister like bumps on my fingers. My PCP said it looked like warts before sending me off to the rheumatologist (without even testing for it 
). But luckily he used an ultrasound to look at the bumps on my fingers and said they are NOT warts. He actually is not sure what they are. It always itches in the spot before they pop up, they are painful and have a tiny red dot in the center. Sometimes there will be a little cluster of them in one spot. Does this sound like what anyone else has? I’m very curious as both the doctors I saw have no idea.