Hi there, If any of you lovely people are on Facebook I created my own Facebook page- Erythromelalgial- A helping hand … I just created it today so it’s empty lol! But I created it for help, knowledge, personal help to you and to vent lol! I like helping people so just want to hel at least one person.
With mine being a blank canvas just now… There are far better groups on Facebook! Where you will feel welcome and supported 
but I hope to get members on mine and create a little family!
Hope you all are well xx