Hi there, If any of you lovely people are on Facebook I created my own Facebook page- Erythromelalgial- A helping hand … I just created it today so it’s empty lol! But I created it for help, knowledge, personal help to you and to vent lol! I like helping people so just want to help at least one person. Also to learn from each other, see if we have similar other body issues we didn’t connect… But might have :).
With mine being a blank canvas just now… There are far better groups on Facebook! Where you will feel welcome and supported 
but I hope to get members on mine and create a little family!
Hope you all are well xx