Has anyone tried Lacosamide for there EM? and how did it work for you/make you feel? How much did you need to take for it to work(if it did)?.
This is my next trial, I have the med in my presence although I want to find out people’s experiences on it. As I’m pretty wary about trying new meds now after Steven Johnson syndrome allergic reaction to my last trial meds for EM.
Any info you could give me on your experiences would be great, thanks.
Hello Lauren,
The Lacosamide looks like it comes from the same family as Lyrica (pregabalin) in that it is used for epilepsy and neuropathic pain.
I had Lyrica and didn't find it much good and in fact after the initial benefit of a few hours sleep (which didn't last) the flares got more frequent. I was only on a low dose 1 x 25mg twice a day.
However, that is just my experience and won't necessarily mean it will be the same for you. I know you have reservations about new drugs after your allergic reactions but there is only one way to find out.
Hope your ulcers continue to heal well.
Let us know how you get on if you decide to try the Lacosamide.
Tillyp
Hi there,
Oh really, I have tried Lyrica before and found it made me feel quite sick!. Hopefully I am okay on it, yeah just wanted to wait until I got a bit of people’s experiences because with having SJS and fighting for my life all due to a med that was to help me has made me very wary about everything but that’s understandable. But hopefully it’s okay! Dermatology run it through and said I’m not at a high risk with it so fingers crossed.
Ulcers have took a little bit of a bad turn again but still getting to see someone about them at least once a week. Yeah, il let everyone know my experience on it when I start!
Thanks for your reply,
Lauren.x