Sad passing of a fellow EM'er

Some of you may have been along round enough to know of a member on this site under the name ‘tillyp’ sadly, Tilly passed away at the weekend due to health issues unrelated to her Erythromelalgia. She had been absent from on here for some time but I kept in touch with her through mails although at the start of this year she started to decline. For those who knew her through the support network, she fought a good fight… Which I’m sure won’t surprise you about Tilly. She will be sadly missed by all who was fortunate enough to know her.

I thought I should say something on here as some of you may have known Tilly or kept in contact with her and may not have known and been worried about her. May she rest in peace. Xx

Thank you for your kindness and tribute. I’m sure your friendship was very meaningful to her.

Tilly was a wonderful lady. One of the first people I met when I came to the site. She was a joy to chat with. Always trying to remain upbeat. I have not been on the site for over a year and first thing I did was look Tilly up. The Lord led me to your precious blog. I am so saddened to learn of her passing but she is in a place where she knows NO PAIN. I am a better person for having known her.