Some of you may have been along round enough to know of a member on this site under the name ‘tillyp’ sadly, Tilly passed away at the weekend due to health issues unrelated to her Erythromelalgia. She had been absent from on here for some time but I kept in touch with her through mails although at the start of this year she started to decline. For those who knew her through the support network, she fought a good fight… Which I’m sure won’t surprise you about Tilly. She will be sadly missed by all who was fortunate enough to know her.
I thought I should say something on here as some of you may have known Tilly or kept in contact with her and may not have known and been worried about her. May she rest in peace. Xx