After seeing a little improvement over the last couple of weeks with some improvement in pain and lots more sleep I'm back to square one. I phoned up my gp in tears today because the pain was hideous but was told that I needed to phone the pain management clinic because a referral has been sent to them. I've now waited 8 weeks for an appointment to come through even though I was told I would be seen within 6 weeks.The only information the pain clinic could give me was "You're on the waiting list" When I queried how long the waiting list was I was told they don't know.
Work was particularly bad today because I had to work outside in below zero temperatures for 2 hours this morning..... in the snow. The cold seem to be causing huge amounts of pain which then turns to EM flares as soon as I go indoors and start to warm up. Not even the fact that I had 30 4yr olds in my care was enough to stop the tears today.The whole 2 hours was spent trying to figure out a way round this without having to give up a job I love in every other respect. I am not able to do my job properly when in so much pain.
I don't want to feel sorry for myself but just really want the pain to stop.